Finally, I would note that all the supplements on my list have numerous human toxicity studies showing they are safe even at much higher levels than I am consuming, and many have human studies showing health benefits in general. It is VERY hard to argue that I am experiencing some kind of placebo effect after nearly 4 years symptom free, when SCA1 is known to be one of the fastest progressing if not the fastest progressing SCA. Each piece of my regimen plays a slightly different and tiny role but, again, I think that TOGETHER they are making the difference. Also, it is my belief (based on the science in animals and cell cultures) that some of the items on the list work on the bad protein issue while others work to enhance general cellular survival and efficiency and still others work to provide extra energy to cells. It is true that if any of the supplements on my list are actually getting to the brain it is in teeny tiny quantities, but my hope and belief is that since these genetic disorders take decades to appear then maybe tiny quantities, WORKING TOGETHER, are enough to change the course of the disease. I know not everyone with SCA or other genetic disorders can run on a treadmill but even if one can't run I am certain most people can stand on a treadmill and hold the handrails while walking and there is ample research showing that any exercise is better than none.Īside from the concept of a multi-pronged approach the second key to understanding what I am trying to do is to understand that SCA1 is like many other neurological disorders in that at the heart of the disease is a protein that misbehaves and hangs around too long so anything that keeps the protein from misbehaving (forming an oligomer) and cleans out the protein (increases autophagy) might be helpful. That means not 70% heart rate, not 20 minutes, not cycling and not boxing, but 30 minutes on a treadmill at 80% max heart rate. I use this exact type, amount and level of exercise because there is scientific evidence that it and ONLY it stops progression of a neurological disorder. Second, although I just said it's not about any single element, I do believe the most important piece of this regimen is my running on a treadmill 30 minutes 3 times a week at 80% max heart rate. In his study 10 patients with Alzheimer’s used numerous alternative therapies TOGETHER and amazingly they got better something individual therapies never before accomplished. Dale Bredesen and his work is the key to what I am trying to do. The concept of using a multi-pronged approach to treating neurological disorders was studied in 2014 by Dr. I believe it's the combination of ALL the elements listed below that are allowing me to keep my symptoms at bay.
#SUNVOX ALTERNATIVE FREE#
Also, starting in 2016 I noticed early symptoms, but now I am symptom free and feel better than I have in a decade and here is what I am doing that I believe is making a difference.įirst, this isn't about any one aspect. Over the last several years I have read hundreds of research papers some of which are linked below. I am neither a doctor nor a researcher, but I do have a strong background in science and graduated with honors from Dartmouth College.
I am 53 years old and in 2013 I tested positive for the SCA1 genetic mutation. To connect one module (source) to another (destination): first touch on the source, second touch on the destination.My name is Joe Peck. The main menu - button with the SunVox icon in the upper left corner of the screen. It is also available for other systems (Windows, Linux, macOS, iOS, etc.).It's possible to use SunVox engine in your own applications using the free library for developers.Generative music features: random selection of notes, random values of controllers, probability effects.
#SUNVOX ALTERNATIVE MOD#
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